For Trials Delivery, we have a wide network of clinical sites throughout the UK. Many are Brain Health clinics, but we also have a number of primary care services participating. Each centre provides a number of valuable services:
Collecting patient data,
As a location where specific studies and trials can be undertaken (See Map)
Recruiting individuals to join our registers and volunteer for studies or trials.
Our studies and trials locations:
Trials Delivery Framework Register
We are creating a national register of valuable information, including memory scores, clinical history, brain scan results, and medications in our Trials Delivery Framework Register. The data collected originates from research registers at each patients' local site.
The register provides doctors with the highest quality information to make more accurate and earlier diagnoses. Researchers also get controlled access to the pseudonymised research data from a large number of people.
In addition to providing their data for research, patients can agree to be re-contacted about taking part in research. This is helping us to create our TDF Register volunteer register, adding a clinical cohort to our Trials Delivery portfolio.
One of the biggest obstacles for researchers to overcome when starting studies or trials is the fragmented and often complicated permissions, contracts and financial costings.
DPUK’s Trials Delivery Framework is being designed to streamline a trials set-up and delivery making it far easier, quicker and efficient to implement.
For example, we are both simplifying and standardising contracts agreements and financial costing templates with the aim of significantly reducing the time it takes to get up and running.
For each of our registers we have a Feasibility Tool, tailored to help identify the most relevant and appropriate individuals to participate in research. These tools are available in our Data Portal where each register is securely housed.
The interactive tools enable researchers to determine the number of Great Minds or Clinical Studies Register members that meet their study's requirements. A similar feasibility tool is also being developed for the TDF Register, making it easy to use for developing a study.
If you already know you would like to recruit participants from Great Minds or the Clinical Studies Register, you should sign up for a researcher account on our customer relationship management system. Once your registration has been approved, you'll be able to log in and apply for volunteers using the same site.
Here is an example of the Great Minds Feasibility tool: