Ethical, legal and social issues in DPUK: full report
Dementias Platform UK marks a new phase in the development of data science and experimental medicine for dementias research in the UK. Drawing on relationships with pre-existing studies and participant populations, DPUK has the potential to impact on researcher practices and participant experiences of dementias science. This report examines the ethical, social and practical issues related to the development of a cross-cohort data platform and the potential recontact of participants from existing cohort populations.