DPUK works with similar organisations around the world to enhance global efforts to beat dementia – in particular by improving access to cohort data.
Alzheimer's Disease Data Initiative
DPUK is a founding partner in the Alzheimer's Disease Data Initiative (ADDI) and its Alzheimer's disease (AD) Workbench.
ADDI is a new global effort that aims to advance AD innovation by connecting researchers with the data needed to generate insights and inform the development of improved treatments and diagnostic tools. The AD Workbench is a cloud-based platform for scientists to accelerate discoveries and innovations for AD and related dementias.
ADDI was created by a coalition of partners – including DPUK – to increase sharing of dementia-related data among researchers and provide new ways to experiment with the most trusted datasets.
Dementias Platform AU
The Centre for Healthy Brain Ageing (CHeBA) at UNSW Sydney is leading the establishment of Dementias Platform Australia (DPAU). DPAU will facilitate data sharing between Australian and international dementia researchers.
DPAU is launching with data from CHeBA's Cohort Studies of Memory in an International Consortium (COSMIC), comprising 44 cohort studies from 33 countries, involving more than 150,000 individual research participants. DPAU will also host the data governed by the CHeBA Research Bank, including cohort studies such as the Memory and Ageing Study (MAS), Sydney Centenarian Study (SCS) and the Older Australian Twins Study (OATS).
The project aims to rapidly add data from other studies related to brain ageing conducted in Australia and beyond – in particular Asia. DPAU will provide easy but secure access and the ability to combine datasets, with applicability in and beyond the dementia research community.
DPAU is led by UNSW Sydney's Centre for Healthy Brain Ageing and has been established in partnership with Monash Secure eResearch Platform and DPUK.
Korea Dementia Research Center
DPUK has signed a memorandum of understanding with the newly launched Korea Dementia Research Center (KDRC). The two organisations will work together to provide shared access to data and to develop best practice in running experimental studies and recruiting participants to trials – all with the aim of enhancing global efforts to find new ways of preventing, diagnosing and treating dementia.
Based at Seoul National University in the Republic of Korea, KDRC was launched by the Korean government in 2020 to accelerate innovative, commercialisation-ready technology in dementia research. KDRC will provide funding for this work and promote collaboration among academic and research institutions, industry, and research hospitals worldwide.
The themes explored in this collaboration – data access, experimental study design, and volunteer recruitment – map on to DPUK's three major research workstreams: the DPUK Data Portal, the Experimental Medicine Incubator, and the Trials Delivery Framework.