Accuracy of routinely-collected healthcare data for identifying motor neurone disease cases: A systematic review
Sophie Horrocks , Tim Wilkinson , Christian Schnier, Amanda Ly, Rebecca Woodfield, Kristiina Rannikmäe, Terence J. Quinn, Cathie L. M. Sudlow
Large, population-based, prospective cohorts will enable powerful studies of the determinants of Motor Neurone Disease, provided identification of disease cases is sufficiently accurate. We found that primary care datasets, particularly from countries with a widely-accessible national healthcare system, are potentially valuable data sources warranting further investigation.