Five members of the public, all committed to the fight against dementia, recently joined us round the table in London. They shared with us their perspectives of what is critical for volunteers to know before joining research studies. We discovered that clear communication around data security and the volunteer’s control over their contribution is vital to build trust.
As a data curation research assistant for DPUK, Josh is chipping away at the coalface of DPUK’s mission to bring cohort data together into a powerful resource for researchers. In his blog he allows us an insight into a key job that makes it possible for researchers to compare data across different cohorts in the Data Portal.