INTRODUCTION

Dementias Platform UK aims to create opportunities for better research by providing access to UK Cohort Data, encouraging leading researchers to work together, brining Academia and Industry into partnership and collaborating with other programmes.

Find out how you can get involved and contact us.

  • Cohort (Population) Studies
  • Collaborators
  • Industry Partners
  • Researchers
  • Study Participants

GET INVOLVED

Cohort (population) Studies

DPUK comprises a diverse range of clinical and population cohorts including deeply phenotyped familial disease cohorts, birth cohorts, mature population cohorts and large scale population cohorts.  These cohorts provide a breadth and depth of data that is not available elsewhere.  Visit our Cohort Tools to find out who is currently involved and to see what information you would need to share.  The utility of DPUK for data sharing is not limited to dementia and there is growing interest in using the platform for other outcomes.  The ability of the DPUK analysis environment to conduct centralised pooled data analyses (in contrast to distributed analyses) is attracting interest from cohorts beyond the UK.  Register for our Data Portal to see how this is done.

DPUK is open to discussion with Cohorts in the UK and across the Globe. To find out more about the relationship between DPUK and Cohorts, please read our Cohort Frequently Asked Questions and Contact Us.

Collaborators

Dementias Platform UK works with a range of organisations in the UK, in Europe and further afield.  Our Global Connections page highlights some of these relationships.  DPUK works with groups and organisations in different ways, DPUK works strategically with some organisations and some of our Researchers and Partners engage directly with organisations who contribute to the delivery of their work.  If you know where you would like to get involved and what you would like to bring to the project you could contact Our Experts directly or Contact Us where we will address your query and put you in touch with the right people to progress discussions.

Industry Partners

DPUK welcomes new partners and would like to hear from you if you would like to get involved.  DPUK launched with 6 Industry Partners in 2014. Each partner contributes to the Platform in cash, in-kind or a mixture of both.  The level of contribution is determined by the size of the organisation.  All Partners sign up to a Consortium Agreement that sets out the terms and conditions of DPUK.  If you are interested in joining DPUK please take a look at our Partners page and Contact Us to arrange an informal discussion.

Researchers

DPUK warmly welcomes researchers, both those that are already involved in our research and those new to our work.  There are a few ways to get involved whether you are an experienced scientist or an early-career researcher.

Our Research section provides an introduction and some background information to help you understand what we are currently researching and what we have planned to work on.  DPUK has created a number of Cohort Tools to assist in developing research idea and a Data Portal to assist in selecting Cohorts for research projects.  To register or to login to use the Data Portal click on the button on the Home page or on the top bar.  To find instructions and guidance on how to register and use the Cohort Tools download our User guide.

DPUK employs a small number of researchers through our Academic Partners to contribute to the delivery of our work.  Vacancies are advertised through the employing institution where access to all post information can be found.  Follow us on Twitter to hear about these opportunities and others related to the work we do.

We are working to enhance the capacity in Dementia Research, to progress this we have appointed Prof. Kim Graham (Cardiff) to the role of Capacity Building Champion.  To inform her thinking and an initial plan to engage Early Career Researchers (ECR), a Survey was launched in July 2016.  We have now re-opened this survey to gather more information and augment our findings.  To share your experience and views please complete the Early Career Researcher Survey online.

We are developing a Network of ECR dementia researchers that we will support through discussion, dedicated events and invitation to join specific aspects of DPUK.  We are also keen to develop the exposure of ECR’s and provide opportunities to meet with more experienced researchers, to initiate this we are offering for ECR’s to “Interview one of our Experts” and invited some ECR’s to join the DPUK Executive at a recent dinner. There will be a dedicated event for ECR’s on 3rd May 2017.  Keep an eye on our Events Calendar and News sections for forthcoming opportunities and contact us if you would like to get involved in our Network or conduct a 1-1 interview.

Study Participation

Dementias Platform UK will be making use of more than 30 population and health studies, gathering data from around two million participants. We are not recruiting people directly for studies, but if you are already registered with a study, then please look out for calls for further studies and research, as this data will form a valuable part of DPUK.

If you are interested in participating in dementias research you can sign up to receive details of relevant studies with Join Dementia Research.  Join Dementia Research has been developed by the National Institute for Health Research (NIHR) in partnership with Alzheimer’s Research UK and the Alzheimer’s Society. This service allows people to register their interest in participating in dementia research and be matched to suitable studies.

The PREVENT Dementia study are currently recruiting in Edinburgh and will be opening recruitment in Oxford and Cambridge in Autumn 2016.  Recent research suggests changes in the brain may precede symptoms of Alzheimer’s disease by many years. These changes suggest that a very early disease process has started before people develop the typical symptoms of dementia such as memory loss.  If this can be proved correct then doctors may be able to identify disease at a very early stage enabling delaying or preventing of the disease from developing into dementia.  Research has previously focused on very elderly individuals with dementia. The PREVENT Research Programme, however, focuses on people in middle age to identify biological and psychological factors which may increase the risk of dementia in later life. During the course of the research once these factors which are changing have been identified the study team would like to select those people at high risk and intervene in this process.  These interventions might be lifestyle changes or measures to affect the risk of an individual developing dementia. Follow @AD_PREVENT on Twitter to receive their updates and news.  To talk to them about getting involved contact them through their website.

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